Support Groups

Reports & Resources

Estimated Value of Family Caregiving, by State

Family Caregiver Alliance and the National Family Caregivers Association have compiled a state-by-state analysis of the number of family caregivers, hours of caregiving services, and their estimated market value. New York State ranks third with an estimated 1.9 million caregivers whose work has an annual market value $20 million dollars.

Click here for state by state data.
(posted 12/20/06)

Caregiver Health A Population at Risk

Family Caregiver Alliance has introduced a new Fact Sheet discussing a significant public health issue – as families struggle to care for their loved ones, their own health is jeopardized. The Fact Sheet describes the impact of caregiving on the mental and physical health of the caregiver, summarizes research from a variety of sources and offers recommendations from a public policy perspective. Click here for the fact sheet.

(posted 12/20/06)

November 2006 - National Family Caregiver Month

● November is National Family Caregiver Month >> more

● NYSOFA Director Neal Lane's Caregiver Statement (posted 11-2-06) >>view statement

● President Bush's Caregiver Proclamation (posted 11-5-06) >>view

● Ideas for National Family Caregiver's Month - from discussion at Caregiver Coordinator Summit (posted 6-15-06) >>view ideas

Emergency Preparedness - for Caregivers

"Just in Case...Emergency Readiness for Older Adults and Caregivers" a 12-page Guide and Checklist (posted 10-25-06) >>visit AoA web site

Medicare Beneficiary Open Enrollment Dates: November 15 - December 31, 2006 >>view details

Medicare Part D: The Eldercare Network of the Capitol Region, in cooperation with Albany, Rensselaer and Schenectady counties have developed a workbook to guide consumers and community volunteers through the process of choosing a Medicare Prescription drug coverage plan. (posted February 2006) >>view publication

Comprehensive Program Development
NASUA Research Briefs
National Comparison Studies

Comprehensive Program Development
How have caregiver programs developed in the US and is there a successful model for growth? Click below to access a presentation.

National Association of Area Agencies on Aging (n4a) >>view presentation

New Jersey Presentation >>view presentation

NASUA Research Briefs
These 11 Research Briefs synthesize a number of key findings and a number of key studies on family caregiver supports and the connection between caregiver support and home and community based services.

#1: Systems Development for Family Caregiver Support Services: AoA Caregiver Listserv Summary

#2 Change, Continuity and Diversity Among Caregivers >>view #2

#3 Information and Assistance: Where We Are....And Where We Can and Should Be >>view #3

#4: Listening to Caregivers: The Role of Needs Assessment in Program Planning

#5: Supporting Caregivers Through Education and Training

#6: Respite Services for Caregivers

#7: Grandparents and Other Relatives Raising Children

#8: Olmstead v. L.C.: Implications for Family Caregivers

#9: Supporting Informal Caregiving (under Medicaid)

#10: Caregiver Support Interventions

#11: In the Middle: A Report on Multicultural Boomers Coping with Family and Aging Issues

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National Comparison Studies
Family Caregiver Alliance has published "State of the States in Family Caregiver Support: A 50 State Study"
(NOTE: This is a very large file and may take some time to download)

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What's the Value of Informal Caregiving?
Researchers Richard Johnson and Simone Schaner of the nonpartisan Urban Institute in Washington, D.C., report these key findings in a new study on the value of unpaid activities of older adults in the United States. Titled "Value of Unpaid Activities by Older Americans Tops $160 Billion Per Year." The full report is available free on the Urban Institute website at http://www.urban.org/url.cfm?ID=311227.

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